Change in the Health System Structure is aWay to Support Parents Having Children with Thalassemia: A Qualitative Study

This study aimed to explore the difficulties of the health system for supporting parents having children with thalassemia. This qualitative study was done for parents having children with thalassemia in Hajar Hospital of Shahrekord University of Medical Sciences in 2017. In this study, the approach for data collection was descriptive qualitative. Ten participants, including 5 mothers, 1 grandmother, 2 fathers, and 2 nurses interviewed in this study. Analyzing the data indicated two categories. The first category needed to change the marriage laws of couples with thalassemia containing two subcategories as follows: marriage prevention of couples with thalassemia and prevention of childbirth. The second category involved with the drug crisis, containing three subcategories as follows: the lack of drugs, inability to provide drugs, and drug complications. Health authorities must take the necessary measures to provide the appropriate treatment and drugs for these patients. Also, there is a need for adequate laws and programs for couples to play a role in preventing childbirth with thalassemia.