The level of loneliness, hopelessness and self-esteem in major thalassemia adolescents

Background and ObjectivesBeta-thalassemia major is the most prevalent genetic blood disorder in Iran. Several studies showed that chronic diseases have a negative impact on self-esteem, social and interpersonal relationships, and psychological health. The purpose of this study was to determine the level of loneliness, hopelessness, and self-esteem in thalassemic adolescents. Materials and MethodsIn this descriptive cross sectional study, 100 thalassemic patients participated through 2010. They were selected by convenience sampling from the Center for Special Diseases. The data were collected by self report. The instruments used in this study included the sampling and demographic data form, Beck Hopelessness Scale, Coopersmith Self-esteem Scale, and Loneliness Scale. Data were analyzed by SPSS 14 software and using descriptive statistics, t- test, ANOVA, and coefficient Pearson correlation. ResultsThe findings indicated that the mean score of hopelessness was 6.12 ± 3.83, loneliness41.66 ± 5.12, and self-esteem 100.86 ± 14.04; 59% of thalassemic patients had low hopelessness, 51% moderate loneliness, and 55% moderate self esteem. There was a statistical significant correlation between the score of hopelessness and self-esteem (p=0.027), but there were not any statistical significant correlations between hopelessness and loneliness and between self-esteem and loneliness. ConclusionsThe results showed that thalassemia had a negative influence on the psychosocial aspects of adolescents’ life. Knowledge of the mechanisms and strategies to prevent psychosocial disorders and promote mental health of thalassemic patients is necessary. Nurses by assessing psychosocial needs, providing necessary psychosocial support, and making appropriate intervention can help promote mental health of thalassemic patients.