THE EFFECT OF APPLYING OREM SELF-CARE MODEL ON QUALITY OF LIFE OF THE MOTHERS HAVING CHILDREN WITH PHENYLKETONURIA

Phenylketonuria is a childrenʾs metabolic with severe mental retardation. The mothers of these children are responsible for the caring and education of their children. This can affect their quality of life. This study is carried out with the goal of determining the effect of applying Orem self-care model on the quality of life of the mothers having children with phenylketonuria. This is a quasi-experimental study that conducted on 31 mothers of children with phenylketonuria who had file in Amin hospital in Isfahan city. Data collection tools consisted of demographic information, health status form base on Orem model and the instrument of quality of life measurement SF-36. Quality of life Scores were determined in a pre-test and the health status forms were completed. Then educational needs were determined and essential education was given during two sessions (2 hours) within two months, individually. After one months of the last educational session, the quality of life questionnaire was completed again and the results were analyzed by SPSS-16 software using descriptive statistics, paired T test, one way ANOVA and χ2. After applying Orem self-care model, the mean of quality of life in total were improved from 64/58 before intervention to 113/80 after intervention which is statistically meaningful (P value<0/05). Application of self-care programs based on educational needs can enhance quality of life of mothers having children with Phenylketonuria and others with the same condition.