Comparison of perspective of children with major thalassemia and their parents about their quality of life in Shahrekord

In addition to control of the disease, improvement of quality of life is important for treatment of the patients suffering from bleeding disorders such as thalassemia. The impact of thalassemia and its complications on the quality of life of these patients and parents perspective has been little studied. Therefore, the aim of this study was to compare the perspective of children with thalassemia and their parents about the quality of life of these children. In this descriptive–analytical study, the quality of life of 39 children with thalassemia referred to Hajar hospital of Shahrekord was studied using a quality of life questionnaire (pedSQL). Opinions of the children and their parents about physical, social, emotional and school functions of the children were collected. The data was analyzed using t-test, Manvitni and Hebsti Spirman tests. Perspective of the children and their parents about the mean of quality and quantity of life in the children was 1.06 and 1.43, respectively (p<0.001). With respect to school and social life, there was no significant difference between the quality of life of the parents and the children. However, in physical (p<0.05) and emotional (p<0.001) aspects, there were significant differences between the two points of view. With respect to physical situation, quality of life of the girls was worse than that of the boys (p<0.05). Overall, quality of life of rural children was lower than that of the urban ones (p<0.001). Perspective of children with major thalassemia and parents abort quality of life especial abort emotional and physical is different. With respect to the role of parents in education of children, administration of programs to improve psychological health in children along with their the patients is recommended.