The Effect of Family-centered Empowerment Model on Quality of Life of Female Patients with Pemphigus Vulgaris Referred to Razi Hospital

Pemphigus vulgaris is a chronic skin condition, which affects the skin and its appendages and like other chronic diseases, as well as different aspects of quality of life of the patients and their families. The current study aimed at evaluating the effect of family-centered empowerment model on quality of life of female patients with pemphigus vulgaris referred to Razi Hospital, Tehran, Iran.
The matched, controlled, clinical trial was conducted on72 female patients with pemphigus vulgaris slected by by purposive sampling and randomly allocated to two groups of the intervention and the control. The data collection instrument included a demographic questionnaire, SF-36 quality of life inventory, which its validity and reliability was confirmed in previous studies (α = 95.9, r = %96.6), and family-centered empowerment model, which it validity (CVR = %82.5; CVI = %84.6) and reliability (α = 92.4; r = %86) was also confirmed. Data were collected in three stages (before, during, and after) of intervention. Intervention was implemented based on the family-centered empowerment model in four steps (perceived threat, promoting self-efficacy, increasing self-esteem and outcome, and process evaluations) for the intervention group and routine care was provided for the control group. Quality of life of patients with pemphigus vulgaris reviewed and compared before and 45 days after the intervention. Data were analyzed with SPSS version 24 using Chi-square, and independent and dependent t tests. P Demographic variables were similar in both groups based on Chi-square test (P > 0.05). Independent t test showed that 10 dimensions of family-centered empowerment model were similar in both groups before the intervention (P > 0.05), but after the intervention paired t test showed significant differences only in the intervention group (P 0.05), but after the intervention paired t test showed significant differences only in the intervention group (P Family-centered empowerment model for patients with pemphigus vulgaris is feasible and associated with improvement of patient's quality of life. Due to the effectiveness of the family-centered empowerment model in improving the quality of life of patients with pemphigus vulgaris, it is recommended to generalize its specificities to other chronic skin diseases.