Health Related Quality of Life in Adult Patients with Hemophilia Referring to Shahid Ghazi Tabtabaei Hematology and Oncology Center, Tabriz, Iran

The complex nature of hemophilia and negative effects on patient body with spiritual state can affect patient’s quality of life. The improved facilities of patient care and access to replace therapies have increased related survival rate, but their socio-mental problems made another concern. The aim of this study was to evaluate the health related quality of life in various dimensions in adult patients with hemophilia. In this study cross-sectional, descriptive and analytical study, a total of 100 Adults with Hemophilia were recruited using A36 Hemophilia-QoL questionnaire, which is a specific tools for hemophiliac patients. The Mean age of patients was 32.16 ±11.68 years, and eighty tree patients were type A hemophilia, and 17 cases were type B hemophilia. The total QoL score in these patients was 71.88±26.89, which considered in the range of Moderate to Poor. There was a significant correlation between severity of diseases and quality of life status, as severe hemophiliacs had less QoL score (rho=0.351, P=0.001). The QoL was very poor in hemophiliacs who lived in urban area in contrast to patients who lived in the city (P=0.013), and single patients have a better QoL than married patients (P=0.155). Regarding the poor quality of life in adults with hemophilia, improving the quality of life in all its aspects seem to be essential in these patients.